Brooke Eby Dies at 37: ALS Advocate’s Cause of Death and Legacy
The creator known as limpbroozkit built a 500,000-follower audience and an online community for people with ALS. The ALS Network announced her death; she was diagnosed in March 2022.
- Brooke Eby, the ALS advocate and creator known online as limpbroozkit, died Thursday, Oct. 1, at 37, the ALS Network announced.
- She was diagnosed with ALS in March 2022, at 33. The announcement did not describe the circumstances of her death.
- Eby built an audience of more than 500,000 followers and founded ALStogether, an online peer community for people with ALS and their caregivers.
Brooke Eby, the ALS advocate and creator known online as limpbroozkit, died Thursday, Oct. 1, at 37. The ALS Network announced her death. She had been diagnosed with ALS in March 2022.
Eby, a Potomac, Maryland, native, built an audience of more than 500,000 followers by posting about life with the disease with humor and bluntness. She also founded ALStogether, a peer community that the ALS Network absorbed this year.
How did Brooke Eby die?
The ALS Network’s announcement did not say how or where she died. Eby lived with ALS, or amyotrophic lateral sclerosis, a progressive neurodegenerative disease that affects nerve cells in the brain and spinal cord, for more than four years after her diagnosis.
She was 33 when she was diagnosed, after having symptoms for several years. In a statement, the organization’s president and CEO, Sheri Strahl, said: “Brooke changed the way people see ALS, but she also changed the way people living with ALS find and support one another.”
Who was Brooke Eby?
Eby graduated from Churchill High School in Potomac. She worked at Salesforce, the software company, and kept working there after her diagnosis. In October 2025, Salesforce awarded her its Golden Hoodie in a video the company posted on YouTube.
Her following came mostly from short videos on TikTok and YouTube, where she explained ALS symptoms, progression and daily life with a mix of humor and detail. TODAY profiled her in May 2023 in a segment titled “Meet the woman facing ALS with heart and humor.”
In June, the ALS Network gave her its Dean and Kathleen Rasmussen Advocate of the Year Award. Its announcement of her death quoted her: “I didn’t choose ALS, but I did choose to get loud, and be irreverent about it, so don’t worry, I’m not getting quiet anytime soon!”
What did Brooke Eby say she wanted people to know about ALS?
In an interview that the Muscular Dystrophy Association (MDA) used in its tribute video on Oct. 2, Eby said: “I wish they knew that there is still no cure.” She also said the disease “needs more attention, more funding, more everything.”
“Not enough change has been made to compare to the speed that ALS moves,” she said in the same interview.
What is ALStogether?
ALStogether is an online peer community on Slack where people with ALS and their caregivers can ask questions, trade practical information and talk to others in the same situation.
Eby said in an October 2024 video that she brought the idea to her team at Salesforce, which gave her a group of people to build it out.
In 2026, ALStogether was integrated into the ALS Network. The organization said she stayed involved until her death. MDA said in its tribute that Eby’s work built “an online peer community where people living with ALS and caregivers could ask questions, exchange practical information, share difficult days, and celebrate moments that mattered.”
Brooke Eby over the years
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Brooke Eby on the It Happened to Me podcast in July 2023, in an episode about living with ALS. (It Happened To Me Podcast) -
Brooke Eby in an October 2024 episode of Nothing Left Unsaid billed as a special ALS update with Dr. Merit Cudkowicz. (Nothing Left Unsaid) -
Brooke Eby on Educator Andrea’s podcast in December 2024, in an episode titled “Swiping Right with ALS.” (Educator Andrea) -
Brooke Eby in the video Salesforce posted in October 2025 when it awarded her the Golden Hoodie. (Salesforce)
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— Bruno Monteiro
Sources: ALS Network, announcement of Oct. 1, 2026 (Sheri Strahl, president and CEO), including a quote from Brooke Eby; Muscular Dystrophy Association, tribute of Oct. 2, 2026, and the interview with Brooke Eby it uses; Brooke Eby, video posted on her YouTube channel, Oct. 4, 2024 (ALStogether). The MoCo Show (MCS Staff), Oct. 2, 2026; VIN News, Oct. 1, 2026. National Institute of Neurological Disorders and Stroke (NIH), definition of amyotrophic lateral sclerosis. Photos and video: TODAY (NBC), May 2023; Advocate Channel (Advocate Now), July 2023; Nothing Left Unsaid podcast, April and October 2024; It Happened to Me podcast, July 2023; Educator Andrea (Those Who Can’t Do), December 2024; Salesforce, October 2025; Muscular Dystrophy Association, October 2026.
Reported from ALS Network on Web.
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